Knowledge of AIDS Network Workshop 2: Expertise and HIV/AIDS
University of Texas Medical Branch, Galveston TX, March 2025
Expertise in the realm of HIV/AIDS is iteratively shaped by the intersections of science, medicine, politics, and activism. Throughout the history of the epidemic, expertise has not only been defined by biomedical professionals but also redefined by activists, often members of afflicted communities. The resulting proliferation of experts and forms of expertise challenges dominant academic discourses and conveys the dynamic relationship between traditional expert knowers and the lived experiences of those most impacted by the virus. Despite progress made in recognizing diverse forms of expertise, the politics of expertise in HIV/AIDS remain fraught.
The concept of expertise in HIV/AIDS is therefore inherently relational and contingent. It is not confined to any one group or institution but is shaped by social contexts, histories, and the material conditions of the epidemic. As the HIV/AIDS crisis has evolved, so too has the landscape of expertise, with new voices, practices, and forms of knowledge continually emerging to challenge established paradigms.
Expertise is something to be studied, and also something that is cultivated through practices of collaboration, reciprocity, and mutual investment across generations of scholarship.
It has become common to speak of the “crisis” of expertise and to link growing distrust of experts with declining confidence in authorities of all sorts. To better understand and evaluate these perceptions of crisis, Dr. Stephen Epstein focused his audience's attention on two underlying shifts in the politics of knowledge in the United States in recent decades that have transformed what it means to be an expert and who can plausibly serve as one: first, the diversification and proliferation of cultural authority, marked by a growing competition to provide answers and make pronouncements on how life should be lived; and second, the simultaneous rise to prominence of hybrid forms of “lay expertise” that include knowledge-empowered social movements. To ground his analysis, he focused on two domains—health and sexuality—where these transformations are especially evident. To bookend this analysis, Epstein traced developments from the early years of the HIV/AIDS epidemic to the recent experience of Covid-19, proposing that in the crucible of pandemics the fault lines of expertise become particularly visible. In his keynote lecture, Epstein provided a somewhat more hopeful account of the crisis of expertise, one that recognizes the risks of populist dismissal of experts but also emphasizes the potential virtues of democratic challenges to traditional expertise in the service of epistemic justice.