Network Participants
Year 1: Archives of HIV/AIDS -- Network Participants
Tankut Atuk is an Assistant Professor of Sociology of Public Health and Medicine at Rensselaer Polytechnic Institute. He is an interdisciplinary scholar whose research is situated at the intersections of Public/Global Health, Medical Anthropology, Social Epidemiology, and Queer Health Activism. His current book project looks at the socio-epidemiological dimensions of the highly politicized HIV epidemic in Turkey where public health has become a pathogenic technology. Through community-engaged and activist research, he seeks to understand and redress the ways in which the formal actors of public health leave HIV-negative people, particularly LGBTQI+ communities, susceptible to HIV infection and HIV-positive people defenseless against socio-medical violence.
Position: Assistant Professor of Sociology of Public Health and Medicine, Rensselaer Polytechnic Institute
https://faculty.rpi.edu/tankut-atuk
Selected social studies of HIV/AIDS publications:
Atuk, T (2024). “If I knew you were a travesti, I wouldn't have touched you”: Iatrogenic violence and trans necropolitics in Turkey, Social Science & Medicine. https://doi.org/10.1016/j.socscimed.2024.116693.
Atuk, T. (2020). Pathopolitics: Pathologies and Biopolitics of PrEP. Frontiers in Sociology, 5. https://doi.org/10.3389/fsoc.2020.00053
Kat Brewster is a Postdoctoral Research Fellow at the University of Michigan School of Information CRIT Lab. There, she works with Oliver Haimson to develop technologies to better serve marginalized people. She received her PhD in 2023 from the University of California, Irvine, where she wrote her dissertation, titled, ‘Surviving Online: Histories and Afterlives of Queer Networked Computing at the Onset of the HIV/AIDS Epidemic in the United States (1980-1990).’ Her book project explores LGBTQ+ digital recordkeeping practices and community archive efforts online, from the 1980s to present day.
Position/affiliation: Postdoctoral Research Fellow, University of Michigan School of Information
https://www.kathrynbrewster.com/
Selected social studies of HIV/AIDS publications:
Brewster, K., & Ruberg, B. (2020). SURVIVORS: Archiving the history of bulletin board systems and the AIDS crisis. First Monday.
Jennifer Brier is professor and Director of Gender and Women’s Studies and professor of History at UIC. She specializes in US sexuality and gender history, as well as public history. Brier wrote Infectious Ideas: U.S. Political Response to the AIDS Crisis (UNC, 2009) and organized and guest edited, “HIV/AIDS in US History: Interchange,” the first article-length piece on HIV/AIDS for the Journal of American History. She has curated numerous historical exhibitions, including Out in Chicago, for the Chicago History Museum, “Surviving and Thriving: AIDS, Politics and Culture,” a traveling exhibition for the National Library of Medicine, and “I’m Still Surviving,” a transmedia living women’s history of HIV/AIDS.
Position: Professor and Director of Gender and Women’s Studies and Professor of History, University of Illinois, Chicago
https://gws.uic.edu/profiles/brier-jennifer/
Selected social studies of HIV/AIDS publications:
Surviving and Thriving: AIDS, Politics and Culture, Traveling Exhibition and Web Gallery for the National Library of Medicine, October 2012-May 2013 (travels 2013-2018); translated into Spanish, bilingual traveling show and website (2020 to present). I’m Still Surviving, www.stillsurviving.net
Selected social studies of HIV/AIDS publications:
“I’m Still Surviving: Oral Histories of Women Living with HIV/AIDS in Chicago,” Oral History Review Special Issue on Decentering and Decolonizing Feminist Oral History, Katrina Srigley and Stacey Zembrzycki eds. (volume 45, no. 1, Winter/Spring 2018): 68-83.
“HIV/AIDS in US History: Interchange,” Journal of American History, volume 104, no. 2, (September 2017): 431–460; guest editor and contributor.
Infectious Ideas: U.S. Political Responses to the AIDS Crisis, University of North Carolina Press, 2009, paperback 2011.
Jih-Fei Cheng is Associate Professor of Feminist, Gender, and Sexuality Studies at Scripps College. Previously, he worked in HIV/AIDS social services, behavioral research, and prevention education in Los Angeles and New York City. He has served as a steering committee or board member for various organizations addressing queer and trans of color communities, including The HIV League. He’s completing his first book manuscript, Materialist Virology, which historicizes the knowledge produced about viruses in the context of racial capitalism, Euro-American settler colonialism, and US military empire. Cheng’s second project examines the histories and translations of genetics across Anglophone and Sinophone contexts.
Position: Associate Professor of Feminist, Gender, and Sexuality Studies, Scripps College
https://www.scrippscollege.edu/offices/profile/jih-fei-cheng
Selected social studies of HIV/AIDS publications:
Cheng, Jih-Fei (2015) “‘El tabaco se ha mulato’: Globalizing Race, Viruses, and Scientific Observation in the Late Nineteenth Century.” Catalyst: Feminism, Theory, Technoscience. Vol. 1, No. 1; 1-41.
Cheng, Jih-Fei (2016). “How to Survive: AIDS and Its Afterlives in Popular Media.” WSQ: Women’s Studies Quarterly, Vol. 44, No. 1-2; 73-92.
AIDS and the Distribution of Crises (2020) eds. Jih-Fei Cheng, Alexandra Juhasz, and Nishant Shahani. Durham: Duke University Press.
Cheng, Jih-Fei (2021) “Keeping it on the Download: The Viral Afterlives of Paris Is Burning.” Queer Nightlife, eds. Kemi Adeyemi, Ramón H. Rivera-Servera, and Kareem Khubchandani. Ann Arbor: University of Michigan Press, 325-354.
Cheng, Jih-Fei (2021) “Cold Blood: HIV/AIDS and the Global Blood Biotechnology Industry.” Radical History Review, Issue 140: The AIDS Crisis Is Not Over, eds. Emily K. Hobson and Dan Royles, 143-150.
Marika Cifor, PhD, is Assistant Professor in the Information School and an adjunct faculty member in Gender, Women and Sexuality Studies at the University of Washington. She is a feminist scholar of archival and digital studies. Her work is supported by the Institute for Museum and Library Services, National Endowment for the Humanities and the National Science Foundation and she has published widely on HIV/AIDS, activist and community archives, and feminist data studies. Cifor is one of the PIs for the Knowledge of AIDS Research Network. Currently, she is working on a new book project about buyer’s clubs within and beyond the HIV/AIDS pandemic.
Position: Assistant Professor, Information School, University of Washington
Selected social studies of HIV/AIDS publications:
Cifor, Marika. Viral Cultures: Activist Archiving in the Age of AIDS. U of Minnesota Press, 2022.
Cifor, Marika. "Viral Generations." Feminist Formations 35, no. 3 (2023): 221-231.
McKinney, Cait, and Marika Cifor. "On Digital Models: Responding to Viral Metaphors in Pandemic Times." Catalyst: Feminism, Theory, Technoscience 8, no. 2 (2022).
Cifor, Marika. "What is remembered lives: Time and the disruptive animacy of archiving AIDS on Instagram." Convergence 27, no. 2 (2021): 371-394.
Cifor, Marika, and Cait McKinney. "Reclaiming HIV/AIDS in digital media studies." First Monday (2020).
Lisa Diedrich is professor of Women’s, Gender, and Sexuality Studies at Stony Brook University. Her research and teaching interests are in critical health studies, disability studies, feminist science studies, critical pedagogies, and graphic medicine. She is the author of Illness Politics and Hashtag Activism; Indirect Action: Schizophrenia, Epilepsy, AIDS, and the Course of Health Activism; and Treatments: Language, Politics, and the Culture of Illness. She is also working on a collection entitled Keywords/Images in Graphic Medicine, co-edited with Briana Martino, to be published by Penn State University Press in 2025.
Position: Professor of Women's, Gender, and Sexuality Studies at Stony Brook University
Selected social studies of HIV/AIDS publications:
Indirect Action: Schizophrenia, Epilepsy, AIDS, and the Course of Health Activism
Treatments: Language, Politics, and the Culture of Illness
"'Without us all told': Paul Monette's Vigilant Witnessing to the AIDS Crisis"
René Esparza is an Assistant Professor in the Department of Women, Gender, and Sexuality Studies at Washington University in St. Louis. His research delves into the intersection of racial and sexual politics within urban spaces, particularly focusing on their implications for public health. He is the author of the forthcoming book From Vice to Nice: Race, Sex, and the Gentrification of AIDS, which investigates how HIV prevention strategies in the 1980s intersected with the gentrification of low-income neighborhoods and the policing of communities of color in the upper Midwest. Esparza's work has been featured in various publications, including Radical History Review, the Journal of the History of Sexuality, and the Journal of African American History.
Position: Assistant Professor, Women, Gender and Sexuality Studies, Washington University in St. Louis
https://wgss.wustl.edu/people/ren%C3%A9-esparza
Selected social studies of HIV/AIDS publications:
René Esparza, “‘We Lived as Do Spouses’: AIDS, Neoliberalism, and Family-Based Apartment Succession Rights in 1980s New York City,” Journal of History of Sexuality 31, no. 1 (2022): 59-88. https://www.utexaspressjournals.org/doi/abs/10.7560/JHS31103
René Esparza, “Qué Bonita Mi Tierra: Latinx AIDS Activism and Decolonial Queer Praxis in 1980s New York and Puerto Rico,” Radical History Review 140 (2021): 107-41.
René Esparza, “Black Bodies on Lockdown: AIDS Moral Panic and the Criminalization of HIV in Times of White Injury,” The Journal of African American History 104, no. 2 (2019): 250-80.
https://www-journals-uchicago-edu.libproxy.wustl.edu/doi/full/10.1086/702415
Alex Fialho is an art historian and curator whose dissertation animates AIDS-related art histories through the lens of African American artists Darrel Ellis, Lola Flash, Lyle Ashton Harris, and Kia LaBeija. Fialho worked as Programs Director of Visual AIDS from 2014–2019 and conducted oral histories for the Smithsonian Archives of American Art’s Visual Arts and the AIDS Epidemic Oral History Project with fifteen cultural producers including Douglas Crimp, Nan Goldin, and Julie Tolentino. Fialho identifies as a white, queer, HIV-negative, cisgender person (he/they). Their work intends to be in service and support of queer, femme, Black and anti-racist creative practices.
Position: PhD candidate, Yale University, History of Art and African American Studies
Website/profile: https://arthistory.yale.edu/people/alex-fialho
Selected social studies of HIV/AIDS publications:
Archives of American Art, Smithsonian Institution, Visual Arts and the AIDS Epidemic: An Oral History Project. Oral history interviews with Ron Athey, Nayland Blake, Gregg Bordowitz, Douglas Crimp, Lia Gangitano, Nan Goldin, Lyle Ashton Harris, Bill Jacobson, Patrick Moore, Jack Pierson, Joey Terrill, Julie Tolentino, Jack Waters, Marguerite Van Cook, and Carrie Yamaoka. https://www.aaa.si.edu/inside-the-archives/visual-arts-and-the-aids-epidemic-oral-history-project
“Vantage Points: On Alice Neel and AIDS.” In At Home: Alice Neel in the Queer World. Edited by Hilton Als. New York: David Zwirner Gallery, 2024 (forthcoming).
“The Syndemic Time of HIV/AIDS and COVID-19—Or Models for Being with Grief.” Authored alongside members of What Would An HIV Doula Do? Collective, “When We’re Coming From: WWHIVDD? On Pandemic Time(s).” In “Pandemic Time.” Edited by Darius Bost. Special issue, Frontiers: A Journal of Women Studies 44, vol. 1, 2023: 122–50.
“Visual AIDS Statement on the Tacoma Action Collective: Direct action and interventions matter.” Visual AIDS website, 2017. https://visualaids.org/blog/tacoma-action-collective-stoperasingblackpeople-direct-action-interventions
“SAFE SEX BANG: A Collection of Communities & Creatives in the Wake of AIDS.” SAFE SEX BANG: The Buzz Bense Collection of Safe Sex Posters. Eds. Buzz Bense, Alex Fialho, Dorian Katz and Carol Queen. Center for Sex & Culture, 2013. 21–31.
Nic Flores, a queer Latinx writer and scholar, is an Assistant Professor at the University of Illinois Urbana-Champaign. He specializes in public and sexual health, sexuality studies, and comparative ethnic and racial studies, with additional interests in Science and Technology Studies. His ethnographic research on HIV prevention explores the impacts of the biomedical intervention known as “PrEP” on Black and Latinx communities in the United States Midwest. His work has appeared in edited collections, and he is currently preparing several articles for publication. Nic’s first book manuscript, Becoming HIV-Negative, is currently under contract with the University of Minnesota Press.
Position: Assistant Professor in the Department of Latina/Latino Studies at the University of Illinois Urbana-Champaign. Faculty Affiliate in the Department of Gender and Women’s Studies (GWS), the Women & Gender in Global Perspectives Program (WGGP), and the Unit for Criticism and Interpretive Theory.
https://lls.illinois.edu/directory/profile/floresn
Selected social studies of HIV/AIDS publications:
Flores, Nic. Becoming HIV-Negative. Minneapolis: University of Minnesota Press, forthcoming.
Flores, Nic. “Learning How to Fuck on PrEP.” In A Pill for Promiscuity, eds. Andrew Spieldenner and Jeffery Escoffier, 65-71. Newark: Rutgers University Press, 2023.
Spieldenner, Andrew and Nic Flores. “Sweet Nothings: A Journey of (Gay) Sex without Condoms.” In Communicating Intimate Health, eds. Angela Cooke-Jackson and Valerie Rubinsky, 3-17. New York: Lexington Books, 2021.
Martin French is a sociologist who studies the social dimensions of technology with an empirical focus on communications & information technology (CIT). His research emphasizes the broader social and political contexts of CIT, focusing especially on risk, surveillance, privacy, and social justice. In his current research, he examines how people and organizations use surveillance and other risk-management techniques to identify and address risks. A key focal point of this current work involves the critical analysis of HIV surveillance assemblages, highlighting how surveillance systems may amplify forms of systemic dis/advantage.
Position & Affiliation: Associate Professor, Department of Sociology & Anthropology, Concordia University (Montreal, Canada)
Selected social studies of HIV/AIDS publications:
Hastings, Colin, Martin French, Alexander McClelland, Eric Mykhalovskiy, Barry Adam, Laura Bisaillon, Katarina Bogosavljevic, Marilou Gagnon, Saara Greene, Adrian Guta, Suzanne Hindmarch, Angela Kaida, Jennifer Kilty, Notisha Massaquoi, Viviane Namaste, Patrick O’Byrne, Michael Orsini, Sophie Patterson, Chris Sanders, Alison Symington, and Ciann Wilson (2023). “Criminal Code Reform of HIV Non-Disclosure is Urgently Needed: Social Science Perspectives on the Harms of HIV Criminalization in Canada,” Canadian Journal of Public Health 115: 8-14, link
Spieldenner, Andrew, Martin French, Venita Ray, Brian Minalga, Cristine Sardina, Robert Suttle, Marco Castro-Bojorquez, Octavia Lewis, and Laurel Sprague. (2022). “The Meaningful Involvement of People Living with HIV/AIDS (MIPA): The Participatory Praxis Approach to Community
Engagement on HIV Surveillance,” Journal of Community Engagement and Scholarship, 14 (2): 1-11, URL.
French, Martin, Adrian Guta,* Marilou Gagnon, Eric Mykhalovskiy, Stephen Roberts,* Alexander McClelland,* Su Goh,* and Fenwick McKelvey (2020). “Corporate Contact Tracing as a Pandemic Response,” Critical Public Health, DOI.
French, Martin (2015). “Counselling Anomie: Clashing Governmentalities of HIV Criminalisation and Prevention,” Critical Public Health 25(4): 427-440. DOI
French, Martin (2009). “Woven of War-Time Fabrics: The Globalization of Public Health Surveillance,” Surveillance & Society 6(2): 101-115.
Octavio R. González is Barbara Morris Caspersen Associate Professor of Humanities and Associate Professor of English and Creative Writing at Wellesley College. His research focuses on two main areas: Critical HIV/AIDS studies and the cultural politics of risk, including queer subcultures; and transatlantic Modernism, including the Harlem Renaissance, the 20th-C. novel, and queer literature before and after Stonewall. González is the author of Misfit Modernism (Penn State UP, 2020), and two poetry collections: Limerence (Queer Mojo/Rebel Satori, 2023) and The Book of Ours (Letras Latinas/U of Notre Dame, 2009).
Position: Associate Professor of Humanities, Associate Professor of English and Creative Writing, Wellesley College
https://www1.wellesley.edu/english/creativewriting/faculty/gonzalez
Selected social studies of HIV/AIDS publications:
(1) “PrEP, the ‘Truvada Whore,’ and the New Gay Sexual Revolution,” essay on pre-exposure prophylaxis (PrEP) against HIV and the sexual politics of moral panics. In RAW: PrEP, Pedagogy, and the Politics of Barebacking, ed. Ricky Varghese, afterword Tim Dean, 47–70. University of Regina Press, 2019. https://nyupress.org/9780889776838/raw/
(2) “Tracking the Bugchaser: Giving The Gift of HIV/AIDS,” Cultural Critique 75, no. 1 (Spring 2010): 82–113. http://www.jstor.org/stable/40800643.
(3) Review Essay of Unlimited Intimacy: Reflections on the Subculture of Barebacking by Tim Dean (Chicago, 2009). Cultural Critique 81, no. 1 (Spring 2012): 125–33 (solicited). www.jstor.org/stable/10.5749/culturalcritique.81.2012.0125
Charlie Hahn is a doctoral candidate in the Department of Anthropology at the University of Washington. His dissertation project examines the use of scientific information technologies in projects of social activism and advocacy, focused primarily on Indigenous ecological and health contexts. He has also contributed previously to a study of long term HIV/AIDS scientific research infrastructures. Along with participating, he is also serving as a graduate assistant for year one of the Knowledge of AIDS network.
Poyao Huang is an assistant professor at the Institute of Health Behaviors, National Taiwan University. Huang received his Ph.D. in Communication and Science Studies at the University of California San Diego. Huang was a postdoctoral research fellow in the Fairbank Center for Chinese Studies at Harvard University (2020–2021) and the Ministry of Science and Technology, Taiwan (2021). He works at the intersection of science and technology studies, queer studies, and media studies, focusing on health disparities and the material and visual culture of HIV/AIDS in the inter-Asian context.
Position: Assistant Professor/ National Taiwan University
https://scholars.lib.ntu.edu.tw/cris/rp/rp200051/information.html?&locale=en
Selected social studies of HIV/AIDS publications:
Huang, P. (2023). Sexual health as surplus: the marketization of PrEP in Taiwan. BioSocieties, 18(2), 410-428.
Huang, P., Du, S. C., Ku, S. W. W., Li, C. W., Bourne, A., & Strong, C. (2023). An object-oriented analysis of social apps, syringes and ARTs within gay Taiwanese men’s chemsex practices. Culture, Health & Sexuality, 1-16.
Huang, P. (2024). Design as sexual practice: The visual culture of social apps and HIV risk in Taiwan. Sexualities, 27(3), 653-674.
Antoine S. Johnson is a historian of medicine whose research interests include Black health activism, the AIDS epidemic, and anti-Black racism in medicine. He is a postdoctoral fellow at Johns Hopkins University in the Department of the History of Medicine and, starting in July, an incoming Assistant Professor of African American & African Studies at the University of California, Davis. He is currently working on a book project, tentatively titled “More than Pushing Pills: Black AIDS Activism in the Bay Area.”
Position: Assistant Professor of African American & African Studies at the University of California, Davis
Selected social studies of HIV/AIDS publications:
Johnson, A. “From HIV-AIDS to COVID-19: Black Vulnerability and Medical Uncertainity.” 2020. AAIHS Black Perspectives. https://www.aaihs.org/from-hiv-aids-to-covid-19-black-vulnerability-and-medical-uncertainty/
Johnson, A. Mitchell, E. and Nuriddin, A. “Syllabus: A History of Antiblack Racism in Medicine.” 2020. AAIHS Black Perspectives. https://www.aaihs.org/syllabus-a-history-of-anti-black-racism-in-medicine/
Johnson, A. “Review of To Make the Wounded Whole by Dan Royles”. 2022. H-Sci-Med-Tech
Dr. Jallicia Jolly is a writer, poet, and reproductive justice (RJ) organizer who is an Assistant Professor in American Studies and Black Studies at Amherst College. She merges community-based research on Black women's health, grassroots activism, and political leadership with RJ organizing and practice in the United States and the Caribbean. Prof. Jolly is the founder and director of the Black Feminist Reproductive Justice, Equity, and HIV/AIDS Activism (BREHA) Collective — a new interdisciplinary, medical humanities lab that bridges research, advocacy, student collaborations, and high-impact learning experiences on the health and movement-building of Afro-diasporic girls, women, and gender diverse people. A 2022-2023 Ford Postdoctoral Fellow, Dr. Jolly’s first book manuscript, Ill Erotics: Black Caribbean Women and Self-Making in the Time of HIV/AIDS, is an ethnography of the reproductive justice organizing of young Black Jamaican women living and loving with HIV that chronicles their everyday confrontations with illness, reproductive violence, and inequality in neocolonial Jamaica.
Position: Assistant Profess in Black Studies & American Studies, Amherst College
https://www.amherst.edu/people/facstaff/jjolly
Selected social studies of HIV/AIDS publications:
“At the Crossroads: Caribbean Women & (Black) Feminist Ethnography in the Time of HIV/AIDS.” Feminist Anthropology, 2021(1-18).
“From At Risk to Interdependent: The Erotic Life Worlds of HIV+ Jamaican Women.” Souls: A Critical Journal of Black politics, Culture, and Society 21, no. 2-3 (2020): 107-131.
“From HIV/AIDS to COVID-19: A Reproductive Justice Lens to Pandemics.” The Lancet: The Art of Medicine 398 no. 10315 (2021): 1958-1959.
Jarrett L. Joubert is a third-year PhD student on the History and Philosophy of Science track of the Biology and Society program at Arizona State University. Jarrett is broadly interested in the global scientific community response to the HIV/AIDS epidemic. His dissertation will involve crafting a history of antiretroviral medications for treatment against HIV infection and AIDS disease.
Position: PhD student, History and Philosophy of Science, Arizon State University
Dr. Alexandra Juhasz is a Distinguished Professor of Film at Brooklyn College, CUNY. She is the author of scholarly books on AIDS including AIDS TV (Duke, 1995) and We Are Having this Conversation Now: The Times of AIDS Cultural Production (with Ted Kerr, Duke, 2022). She has been making AIDS activist video since 1987’s, Women and AIDS (with Jean Carlomusto for the Living with AIDS Show). She is currently completing the feature AIDS documentary, Please Hold, which asks: How does mourning, haunting, and memory change across time and tech?
Position: Distinguished Professor of Film, Brooklyn College, CUNY
Selected social studies of HIV/AIDS publications and media:
We Are Having this Conversation Now (Duke, with Ted Kerr, 2022): https://alexandrajuhasz.com/books/we-are-having-this-conversation-now/
AIDS and the Distribution of Crises (Duke, with Jih-Fei Cheng and Nishant Shahani, 2020): https://alexandrajuhasz.com/books/aids-and-the-distribution-of-crisis/
AIDS TV (Duke, 1995): https://www.dukeupress.edu/aids-tv
Video Remains (2005, feature documentary): https://alexandrajuhasz.com/films-videos/video-remains/
I Want to Leave a Legacy: The Video/Activism of Juanita Mohammed Szczepanski (short video, with Juanita Szczepanski, 2022): https://visualaids.org/blog/remembering-juanita-mohammed-szczepanski
Theodore (ted) Kerr is a writer and organizer. He is the co-author of We Are Having This Conversation Now: The Times of AIDS Cultural Production (with Alexandra Juhasz, Duke University Press, 2022). He is a founding member of What Would an HIV Doula Do? For the US National Library of Medicine, Kerr curated a travelling and online exhibition: AIDS, Posters, and Stories of Public Health: A People’s History of a Pandemic. Kerr performed 10 interviews for the Smithsonian Archives of American Art's Visual Arts and the AIDS Epidemic: An Oral History Project.
Website: www.tedkerr.club
Selected social studies of HIV/AIDS publications:
We Are Having This Conversation Now: The Times of AIDS Cultural Production (with Alexandra Juhasz, Duke University Press, 2022)
Link: https://www.dukeupress.edu/we-are-having-this-conversation-now
What You Don’t Know About AIDS Could Fill A Museum: Curatorial ethics and the ongoing epidemic in the 21st Century (as editor, On Curating, 2019)
Link: https://www.on-curating.org/issue-42.html#.Zfncen3MLWs
AIDS 1969: HIV, History, and Race (Drain Magazine, 2016)
Link: https://drainmag.com/aids-1969-hiv-history-and-race/
How to Have an AIDS Memorial in an Epidemic (C Magazine, 2019)
Link: https://cmagazine.com/articles/how-to-have-an-aids-memorial-in-an-epidemic
Embracing What We Know and Don’t Know About Robert Rayford (The Body, 2021)
Link: https://www.thebody.com/article/embracing-what-we-know-and-dont-know-robert-rayford
Alexander McClelland (he/him) is based on the unceded Algonquin territory of Ottawa, Canada, where his public-facing and community-engaged research program is focused on the intersection of life, law, and disease. As someone living with HIV, he aims to develop knowledge to support the realization of bodily autonomy for HIV-positive and other socially marginalized people. Bringing together critical criminology, anarchist studies, surveillance studies, feminist social research, and critical public health, McClelland’s work attends to understanding the impacts of criminalization processes and communicable disease surveillance.
Position: Assistant Professor, Institute of Criminology and Criminal Justice, Carleton University
Personal website:https://www.alexandermcclelland.ca/
Selected social studies of HIV/AIDS publications:
Criminalized Lives: HIV and Legal Violence. A. McClelland. (2024). Rutgers University Press. https://www.rutgersuniversitypress.org/criminalized-lives/9781978832053/
Towards a critical public health research agenda on the intersections of HIV treatment, advanced surveillance technologies, and the ongoing criminalization of HIV in Canada and the United States. American Journal of Public Health. C. Hastings, A. McClelland, A. Guta, M. Owino, E. Manning, M. Orsini, R. Elliot, M. Gagnon, S. Molldrem. (2021), Volume 11, Number 7, pp. 1252-1254. https://ajph.aphapublications.org/doi/abs/10.2105/AJPH.2021.306236?journalCode=ajph
We are people, not clusters! American Journal of Bioethics. E.J. Bernard, A. McClelland, B. Cardell, C. Chung, M. Castro-Bojorquez, M. French, D. Hursey, N. Khanna, B. Minalga, A. Spieldenner, S. Strub. (2020). https://www.tandfonline.com/doi/full/10.1080/15265161.2020.1809550
“Lock This Whore Up”: Legal violence and flows of information precipitating personal violence against people criminalized for HIV-related crimes in Canada. A. McClelland. (2019). In M. French & L. Letourneau (Eds.), Special issue on Big Data and Risk Regulation, European Journal of Risk Regulation. 10(1): 132-147. https://doi.org/10.1017/err.2019.20
The rise of Molecular Surveillance: ethical, criminalization & rights implications. Critical Public Health. A. McClelland, A. Guta & M. Gagnon. (2019).30(4):487-49. https://www.tandfonline.com/doi/full/10.1080/09581596.2019.1582755
Claire McDonald Indermaur is a doctoral candidate at the University of Washington's Information School. Their research draws upon and contributes to queer and transgender studies, science and technology studies, archival studies, and critical health/medical rhetoric.
Position: PhD candidate, Information School, University of Washington
https://ischool.uw.edu/people/phd/profile/cmcd276
Selected social studies of HIV/AIDS publications:
McDonald Indermaur, C. (2023). “Viewpoints (both subjective and objective)”: Developing and perceiving expertises in AIDS INFO BBS’ Open Forum. Presentation; American Studies Association (ASA) Annual Meeting, Montreal, CN.
Cifor, M. and McDonald, C. (2023). “I hope we leave more of a record”: Radical queer care within and for the AIDS INFO BBS’s caregivers mailing list. Feminist Media Histories 9:1, 78-97. DOI: 10.1525/fmh.2023.9.1.78
Cait McKinney is the author of Information Activism: A Queer History of Lesbian Media Technologies (Duke 2020), winner of the Gertrude Robinson Best Book Prize from the Canadian Communication Association and a Lambda Literary Award Finalist for LGBTQ studies. Their new book on the legacies of Pee-wee Herman, I know you are, but what am I?, is forthcoming from University of Minnesota Press in 2024. McKinney's HIV/AIDS scholarship focuses on activism, computing, and the internet, and has been published in Communication, Culture, and Critique, First Monday, Catalyst, Feminist Media Histories, Continuum, and the edited collection AIDS and the Distribution of Crises (Duke 2020).
Position: Assistant Professor, School of Communication, Simon Fraser University
Selected social studies of HIV/AIDS publications:
Mulvin, Dylan and Cait McKinney. 2023. “The Girl in the Bubble: An Essay on Containment.” Catalyst 9(1). https://doi.org/10.28968/cftt.v9i1.38131
McKinney, Cait and Dylan Mulvin. 2023. “High-Touch Media: Caring Practices at the Deaf AIDS Information Center.” Feminist Media Histories 9(1): 98–122. https://doi.org/10.1525/fmh.2023.9.1.98
McKinney, Cait and Marika Cifor. 2022. “On Digital Models: Responding to Viral Metaphors in Pandemic Times.” Catalyst 8(2): https://doi.org/10.28968/cftt.v8i2.36263
McKinney, Cait. “Crisis Infrastructures: AIDS Activism Meets Internet Regulation.” In AIDS and the Distribution of Crises, edited by Jih-Fei Cheng, Alexandra Juhasz, Nishant Shahani, 162–182. Durham and London: Duke University Press, 2020.
McKinney, Cait and Dylan Mulvin. 2019. “Bugs: Rethinking the History of Computing.” Communication, Culture, and Critique 12(4): 476-98. https://doi.org/10.1093/ccc/tcz039
Stephen Molldrem, PhD (he/him) is an Assistant Professor at the University of Texas Medical Branch (UTMB) in the Institute for Bioethics and Health Humanities. He is a qualitative social researcher, health policy analyst, and ethnographer situated in Science and Technology Studies (STS), public health ethics, sexuality studies, and critical data studies. His scholarship on HIV/AIDS has included ethnographic research and other qualitative studies about transformations in the US federal policy paradigms that govern the management of HIV in the era of treatment-as-prevention. This work includes ongoing projects about the integration of US HIV public health data infrastructures as part of the implementation of the National HIV/AIDS Strategy as well as analyses of social movement dynamics and ethical issues stemming from new approaches to HIV surveillance. Learn more on his website and find his CV here.
Position: Assistant Professor, Bioethics and Health Humanities, The University of Texas Medical Branch
Website: StephenMolldrem.com
Selected social studies of HIV/AIDS publications:
Molldrem, Stephen, and Anthony K J Smith. “Health Policy Counterpublics: Enacting Collective Resistances to US Molecular HIV Surveillance and Cluster Detection and Response Programs.” Social Studies of Science, December 6, 2023. https://doi.org/10.1177/03063127231211933.
Molldrem, Stephen. “HIV Data as Queer Data: Biomedical Sexualities, Treatment-as-Prevention, and the New Sex Hierarchy for People Living with HIV.” In Queer Data Studies, edited by Patrick Keilty, 128–54. Feminist Technosciences. Seattle: University of Washington Press, 2023.
Molldrem, Stephen, Anthony K J Smith, and Alexander McClelland. “Predictive Analytics in HIV Surveillance Require New Approaches to Data Ethics, Rights, and Regulation in Public Health.” Critical Public Health 33, no. 3 (May 27, 2023): 275–81. https://doi.org/10.1080/09581596.2022.2113035.
Molldrem, Stephen, and Anthony K J Smith. “Reassessing the Ethics of Molecular HIV Surveillance in the Era of Cluster Detection and Response: Toward HIV Data Justice.” The American Journal of Bioethics 20, no. 10 (October 2, 2020): 10–23. https://doi.org/10.1080/15265161.2020.1806373.
Molldrem, Stephen. “How to Build an HIV out of Care Watch List: Remaking HIV Surveillance in the Era of Treatment as Prevention.” First Monday 20, no. 10 (September 17, 2020). https://doi.org/10.5210/fm.v25i10.10295.
Dean Murphy is a Senior Research Fellow at the Australian Research Centre in Sex, Health and Society. His work focuses on HIV biomedical technologies, HIV seroconversion and diagnosis, HIV-related stigma, experiences of sexual health and well-being, and the meanings of drug consumption. Other recent research includes: acceptability of COVID-19 vaccination; changes in sexual practices, drug consumption, and health-seeking behaviour during the COVID-19 pandemic; and experiences of sexual health among young Aboriginal people. His book, Gay Men Pursuing Parenthood Through Surrogacy: Reconfiguring Kinship, was published in 2015.
Position: Senior Research Fellow at the Australian Research Centre in Sex, Health and Society
https://scholars.latrobe.edu.au/damurphy
Selected social studies of HIV/AIDS publications:
Murphy D, Race K, Pienaar K, Lea T. (Accepted) ‘Remaking chemsex event-networks in the era of HIV pre-exposure prophylaxis (PrEP). Body & Society.
Race K, Murphy D, Pienaar K, Lea T. (2023) Injecting as a sexual practice: Cultural formations of ‘slamsex’. Sexualities 26(5-6): 620-637. doi: 10.1177/1363460720986924
Murphy D, Ellard J, Maher L, Saxton P, Holt M, Haire B . . . Prestage, G. (2022). How to have sex in a pandemic: the development of strategies to prevent COVID-19 transmission in sexual encounters among gay and bisexual men in Australia. Culture, Health & Sexuality, 1-16. doi:10.1080/13691058.2022.2037717
Rosengarten M, Murphy D. (2019). A Wager on the Future: A Practicable Response to HIV Pre-Exposure Prophylaxis (PrEP) and the stubborn fact of process. Social Theory & Health, 18:1–15. doi: 10.1057/s41285-019-00115-y
Murphy D, Philpot S, Brown G & Prestage G. (2021). Domestic mobility and experiences of disconnection from sexual health care among gay and bisexual men in Australia: insights from a qualitative study. Sexual Health, 18(6) 508-511. doi: 10.1071/SH21191
Michael Nebeling Petersen is associate professor in Gender Studies at the Center for Gender, Sexuality and Difference at the University of Copenhagen, Denmark. He has especially studied homosexual culture and citizenship, new technologies of reproduction and kinship as well as digital media and mediated cultures of intimacy – in particular, in the intersections between sexuality, gender, whiteness, and national belonging. Currently, he is PI for the collaborative interdisciplinary project The Cultural History of AIDS in Denmark, that aims to write the Danish history of AIDS and examines how AIDS emerged, became signified and became embedded in Danish culture 1981-2000.
Position: Lecturer, Department of Nordic Studies and Linguistics
Professional website: https://nors.ku.dk/english/staff/?pure=en/persons/194636
The Cultural History of AIDS in Denmark website: https://nors.ku.dk/english/research/centre-for-gender-studies/chad/
Selected social studies of HIV/AIDS publications:
Nebeling Petersen, M., Wung-Sung, T., Larsen, B. F., Eriksen, C. B. & Bissenbakker, M. (forthcoming, 2024): AIDS. Aids-krisens danske historie. [The Danish history of AIDS]. Copenhagen, Denmark: Gads forlag.
Eriksen, C.B. & Nebeling Petersen, M. (in review): The Racialisation of AIDS in Denmark: Analysing Tabloid Media Scandals of Sex, Race and Contagion.
Nebeling Petersen, M. et al. (eds.) (2023): Skandinaviske hiv/aids-historier [Scandinavian histories of HIV/AIDS]. Special issue, Kvinder, Køn & Forskning 23(1). https://tidsskrift.dk/KKF/issue/view/10123
Nebeling Petersen, M. et al. (2023): En introduktion til en skandinavisk hiv/aids-historie [An introduction to a Scandinavian history of HIV/AIDS]. Kvinder, Køn & Forskning 23(1): 7-20. https://tidsskrift.dk/KKF/article/view/138223/182455
Nebeling Petersen, M. & Nielsen, A. H. (2023): Danske aids-kampagners repræsentation af hiv/aids 1983-1996 [The representations of HIV/AIDS in Danish AIDS campaigns 1983-1996]. Kvinder, Køn & Forskning 23(1): 80-101. https://tidsskrift.dk/KKF/article/view/138224/182458
David Ribes (he/him) is associate professor in the Department of Human Centered Design and Engineering (HCDE) and director of the Data Ecologies Lab (deLAB) at the University of Washington. He is a sociologist of science and technology who focuses on the development and sustainability of research infrastructures (i.e., networked information technologies for the support of interdisciplinary science); their relation to long-term changes in the conduct of science; and, transformations in objects of research. David is a regular contributor to the fields of Science and Technology Studies (STS) and Information Studies. His forthcoming book, ‘Machineries of Similarity and Difference: AIDS From Its Research Infrastructures’ is a sociotechnical inspection of the concept of interoperability, tracking the trajectory of three HIV/AIDS cohort studies as they combined over three decades.
Position: Associate Professor, Human Centered Design and Engineering, University of Washington
http://davidribes.com and dataecologi.es
Selected social studies of HIV/AIDS publications:
Ribes, David. “Notes on the Concept of Data Interoperability: Cases from an Ecology of AIDS Research Infrastructures.” Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing, 2017, 1514–26.
Ribes, David, and Jessica Beth Polk. "Organizing for ontological change: The kernel of an AIDS research infrastructure." Social Studies of Science 45.2 (2015): 214-241.
Ribes, David, and Jessica Beth Polk. “Flexibility Relative to What? Change to Research Infrastructure.” Special Issue of the Journal of the Association of Information Systems (JAIS) on Innovation in Information Infrastructures 15, no. May (2014): 287–305.
Forthcoming Book: Machineries of Similarity and Difference: Tales from Ecology of AIDS Research Infrastructures. MIT Press.
Emily Lim Rogers is Assistant Professor of Cultural Anthropology at Duke University. She works on how people navigate uncertainty in the context of emergent diseases with deficits of biomedical knowledge. Her first project is on patient activism and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), with a book manuscript, Clinical Proximities: ME/CFS and Viral Uncertainty, currently under review. Her second project turns to the ambivalent politics of what lives under the description “alternative medicine” in the US. Currently she is researching AIDS activists who chose to pursue non-pharmaceutical treatments, and how they politicized their decision-making through a critique of Western biomedicine.
Position: Assistant Professor, Anthropology, Duke University
Website: www.emilylimrogers.com
Dan Royles is an Associate Professor of History at Florida International University in Miami, where he teaches courses on United States, African American, LGBTQ, public, and oral history. His first book, To Make the Wounded Whole: The African American Struggle against HIV/AIDS, was published in 2020 by University of North Carolina Press. He is also a co-lead for the Miami AIDS Memorials Project.
Position: Associate Professor, Department of History, Florida International University
Website: danroyles.com
Selected social studies of HIV/AIDS publications:
Dan Royles, To Make the Wounded Whole: The African American Struggle against HIV/AIDS (UNC Press, 2020)
“‘Fuck the Gay Movement’: Dissemblance and Desire in a Black AIDS Activist Oral History,” chapter in New Directions in Queer Oral History: Archives of Disruption, ed. Clare Summerskill, Amy Murphy, and Emma Vickers (Routledge, 2022)
“The AIDS Crisis Is Not Over,” special issue of Radical History Review (co-edited with Emily Hobson, May 2021)
“Tales from Behind the Wall: ACT UP/Philadelphia and HIV in Prisons,” Pennsylvania Magazine of History & Biography (October 2019)
"America Responds to Monkeypox: Learning from the History of HIV/AIDS," Nursing Clio (July 28, 2022)
Tony Sandset, PhD, is a Researcher at the University of Oslo, Faculty of Medicine. His work focuses on the politics of HIV/AIDS prevention and, in particular, on issues around health equity, ethnicity, sexuality, and class. He has conducted research on the discourse around 'ending AIDS' as well as research on PrEP and now also on long-term survivors of HIV and aging with HIV in Norway. He is particularly interested in the intersection of expertise, knowledge, and power and how such concepts can be used as analytical devices in HIV/AIDS research.
Position: Researcher, University of Oslo, Faculty of Medicine
https://www.med.uio.no/sustainit/english/people/aca/tjsandse/index.html
Selected social studies of HIV/AIDS publications:
Sandset, Tony (2024). ‘Ending AIDS’ between comparison and commensuration and the role of global health indicators. Global Public Health. ISSN 1744-1692. 19(1). doi: 10.1080/17441692.2024.2312435.
Sandset, Tony Joakim Ananiassen; Villadsen, Kaspar; Heggen, Kristin & Engebretsen, Eivind (2021). Discipline for pleasure: a new governmentality of HIV prevention. BioSocieties. ISSN 1745-8552. doi: 10.1057/s41292-021-00257-1.
Nagington, Maurice & Sandset, Tony Joakim (2020). Putting the NHS England on trial: uncertainty-as-power, evidence and the controversy of PrEP in England. Medical Humanities. ISSN 1468-215X. 46(3), p. 176–179. doi: 10.1136/medhum-2019-011780.
Andrew Spieldenner (he/him) (Ph.D., Howard University) is Executive Director of MPact Global Action and Associate Professor of Health Communication at California State University-San Marcos. Dr. Spieldenner is a community-engaged researcher and advocate with 30 years of experience in HIV. Openly living with HIV, Dr. Spieldenner is currently on the Developed Countries Delegation to the Global Fund to Fight AIDS, Tuberculosis and Malaria. He is the author of multiple articles and co-editor of the books Intercultural Health Communication (Peter Lang, 2020), Post-AIDS Discourse in Health Communication (Routledge, 2022) and A Pill for Promiscuity (Rutgers, 2023).
Position: Executive Director, MPact Global Action; Associate Professor, Communication, California State University, San Marcos
Linkedin: https://www.linkedin.com/in/andrew-spieldenner-680a03126/
Selected social studies of HIV/AIDS publications:
Andrew Spieldenner & Jeffrey Escoffier. (Eds.) (2023). A pill for promiscuity: Gay sex in a pharmaceutical age. New Brunswick, NJ: Rutgers University Press.
Andrew Spieldenner & Cindy Patton. (2023). Funny thing about pandemics: Queer histories, interventions and communities in HIV, COVID-19 and mpox. QED: A Journal in GLBTQ Worldmaking, 10(1), 191-201. https://www.muse.jhu.edu/article/904876.
Andrew Spieldenner, Martin French, Brian Minalga, Cris Sardina, Robert Suttle, Marco Castro-Bojorquez, Octavia Lewis & Laurel Sprague. (2022). The Meaningful Involvement of People with HIV/AIDS (MIPA): The participatory praxis approach to community engagement on HIV surveillance. Journal of Community Engagement and Scholarship, 14(2), Article 1. Available at: DOI: 10.54656/jces.v14i2.26
Ambar Basu, Andrew Spieldenner & Patrick Dillon. (Eds.) (2022). Post-AIDS discourse in health communication: Sociocultural interpretations. New York, NY: Routledge.
Andrew Spieldenner, Laurel Sprague, Ari Hampton, Meta Smith-Davis, Dwight Peavy, Ann Bagchi, Barb Cardell, Vanessa Johnson, Gina Brown & Russell Brewer. (2019). From consumer to community-based researcher: Lessons from the PLHIV Stigma Index, in P. Kellett (Ed.), Narrating patienthood: Engaging diverse voices on health, communication, and the patient experience (p. 151-166). New York, NY: Lexington Press.
Vishnu Subrahmanyam (he/they) is a second-year Ph.D. student at the University of Texas Medical Branch whose interests converge around Critical HIV Studies, Feminist STS of Care, and Queer notions of Love and Forgiveness. He is also invested in incorporating community-led research practices into his work and has prior experience working with queer populations and people in sex work in Southern India.
Position: Ph.d. student, University of Texas
Selected social studies of HIV/AIDS publications:
Molldrem, Stephen, Anthony KJ Smith, and Vishnu Subrahmanyam. "Toward consent in molecular HIV surveillance?: Perspectives of critical stakeholders." AJOB Empirical Bioethics 15, no. 1 (2024): 66-79.
Mairead Sullivan is Associate Professor and Department Chair of Women’s and Gender Studies at Loyola Marymount University. Sullivan is the author of Lesbian Death: Desire and Danger Between Feminist and Queer. Sullivan’s work sits at the nexus of feminist and queer cultural studies and public health. They are currently writing a book on the herpes virus as a case study to understand the cultural impact of the HIV/AIDS crisis in the context of sexual health.
Position: Associate Professor, Department Chair, Department of Women's and Gender Studies Bellarmine College of Liberal Arts
Website: maireadsullivan.com or https://bellarmine.lmu.edu/womensandgenderstudies/faculty/?expert=mairead.sullivan
Selected social studies of HIV/AIDS publications:
Sullivan, Mairead. “A Crisis Emerges: Lesbian Health between Breast Cancer and HIV/AIDS.” Journal of Lesbian Studies 0, no. 0 (July 25, 2017): 1–15. https://doi.org/10.1080/10894160.2017.1340867.
Sullivan, Mairead . “Intersectionality and Its Limits: Quantitative Public Health and the Epidemiology of Sexually Transmitted Infections.” In The Routledge Companion to Intersectionalities, edited by Jennifer C. Nash and Samantha Pinto, 1st edition. New York, NY: Routledge, 2023.
Sullivan, Mairead. Lesbian Death: Desire and Danger between Feminist and Queer. Minneapolis: Univ Of Minnesota Press, 2022.
Boehmer, Ulrike, Melissa Clark, Mark Glickman, Alison Timm, Mairead Sullivan, Judy Bradford, and Deborah J. Bowen. “Using Cancer Registry Data for Recruitment of Sexual Minority Women: Successes and Limitations.” Journal of Women’s Health 19, no. 7 (June 24, 2010): 1289–97. https://doi.org/10.1089/jwh.2009.1744.
Rothman, Emily F., Mairead Sullivan, Susan Keyes, and Ulrike Boehmer. “Parents’ Supportive Reactions to Sexual Orientation Disclosure Associated With Better Health: Results From a Population-Based Survey of LGB Adults in Massachusetts.” Journal of Homosexuality 59, no. 2 (February 1, 2012): 186–200. https://doi.org/10.1080/00918369.2012.648878.
Lynn M. Thomas is the Giovanni and Amne Costigan Endowed Professor of History at the University of Washington. She is adjunct in Anthropology and Gender, Women & Sexuality Studies. Thomas is the author of Politics of the Womb: Women, Reproduction, and the State in Kenya (2003) and Beneath the Surface: A Transnational History of Skin Lighteners (2020), and a co-editor of The Modern Girl Around the World (2008) and Love in Africa (2009). She teaches a course on the Global History of AIDS. Her current research examines the transnational history of abortion between Kenya and the United States since the 1960s.
Position: Giovanni and Amne Costigan Endowed Professor, Department of History, University of Washington
https://history.washington.edu/people/lynn-m-thomas
Selected social studies of HIV/AIDS publications:
Lynn M. Thomas, “Of Gag Rules and Global Partnerships,” Africa is a Country (July 7, 2017)
Jennifer Cole and Lynn M. Thomas, eds., Love in Africa (Chicago: University of Chicago Press, 2009)
Maile Aihua Young is a Ph.D. candidate in the Department of English at the University of California, Santa Barbara. Their research examines the post-1945 development of global public health culture through epidemiology and Asian diasporic literature. Reconsidering the limitations of how epidemiology constructs race, territory, and life as fixed categories, they track how the Asian figure has been interpellated through disease in scientific and cultural production to imagine an Asian American life not at odds with disease. They also serve as the co-convener for the Asian/American Studies Collective and the graduate assistant at the Health Justice and Community Initiative.
Position: Graduate Student at UC Santa Barbara
https://english.ucsb.edu/people/graduate-students/young-maile/